September 14, 2009
W.Va. ups Alzheimer's efforts for doctors, patients
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MORGANTOWN, W.Va. -- A new outreach program targeting West Virginia physicians could help lead to earlier diagnosis, better treatment and more support for tens of thousands of people who suffer with Alzheimer's disease, organizers announced Monday.

The West Virginia Alzheimer's Outreach and Registry Program will offer continuing medical education for doctors, starting with five courses this fall and Web access for those who want to participate online.

"Registry and outreach are antiseptic words with all of humankind behind those words,'' said Sen. Jay Rockefeller, D-W.Va., who announced the program at the Blanchette Rockefeller Neurosciences Institute. The research center at West Virginia University is named for his mother, who died in 1992 after her own battle with the memory-stealing disease.

"It's really putting a moving train on a solid track all over the state,'' Rockefeller said, "starting with education.''

The program will help educate physicians about resources that could help their patients and their patients' families, including state-funded respite services for exhausted caregivers.

"Sometimes the opportunity to take a shower, take a walk, take a nap is so critical,'' said Sandra Vanin, commissioner of the Bureau of Senior Services, whose agency is a partner in the initiative along with the West Virginia Medical Foundation, the state Alzheimer's Association and the West Virginia Cable Telecommunications Association.

The registry, meanwhile, is a secure database allowing doctors to share information about demographics, diagnosis and treatment, with password-encrypted access and other measures to protect patients' privacy.

The registry may help researchers, policy makers and legislators better understand the scope of the problem and what financial resources are needed to address it, said Dr. Bernard Schreurs, program director for the outreach project.

Experts estimate more than 40,000 West Virginians suffer from the disease, but Schreurs said the figure could be much higher.

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