December 27, 2012
Let's gooo, Makayla! Teen 'never let anything stop her'
WVU fan with Down syndrome beat cancer at 2, got sick again, lost father on Dec. 4
Kenny Kemp
Kay Clark said the support for daughter Makayla, 17, has been overwhelming. Her Facebook page, "Cheering for Makayla," has more than 5,000 "likes" and is an easier way to keep people updated about Makayla's condition, Kay said. Makayla was born with Down syndrome, was diagnosed with cancer at age 2, became cancer free and is now battling post-transplant lymphoproliferative disorder at Cincinnati Children's Hospital.
Page 2 of 2
Kenny Kemp
After a long while, the Clark family (from left), Christopher, Kay, Makayla, Brittany, Shaun and James II) got to be together again but, unfortunately, to say goodbye to their father and Kay's husband, Jim, who died Dec. 4 in Makayla's hospital bathroom. Makayla and Kay traveled from Cincinnati Children's Hospital -- where Makayla is being treated for post-transplant lymphoproliferative disorder.
Advertiser

The move has been admittedly stressful on the family, Kay said.

Makayla's mom, an employee at CAMC, has used all of her paid time-off and vacation days. She is relying on the Family and Medical Leave Act to be able to stay with her daughter in a hospital room three hours from home.

Kay said she and her husband slept on a couch in their daughter's room nightly until they decided an air mattress was a more comfortable, conceivable option.

Since Dec. 4, though, Kay has slept in Makayla's hospital room without Jim.

Jim Clark, 63, collapsed in his daughter's hospital room bathroom.

"They pulled her bed out of the room and took her away so she didn't see anything. She told my mom, 'It's OK. Go with dad," said Brittany Clark, 23, Jim's daughter and Makayla's sister.

Brittany said her father had a heart transplant in 2004 and he "got so used to heart attacks," she said. He even had a heart attack during a West Virginia University-Virginia Tech game years ago and it didn't faze him, she said.

She said the family still isn't sure what caused her father's death.

Makayla misses her father.

"They were really, really close," Brittany said of her father and sister. "They watched every Mountaineers football and basketball game together."

In October, Makayla and Jim got to speak to WVU men's basketball coach Bob Huggins when he called her hospital room to comfort her.

The South Huntington Animal Hospital gave Makayla a blue and gold WVU basketball signed by Huggins last month.

Jim Clark was by Makayla's side every day before he died and Brittany said he was the perfect dad as her sister was growing up, too.

"Every single morning, he knew he had to make her bacon and eggs. He took her to the bus stop every morning and picked her up every day," Brittany said. "He took her to therapy, cooked her dinner, and they were just big WVU fans."

Now Makayla's mom gets her ready for bed every night. Kay changes her daughter's sheets twice throughout each night because Makayla sweats so much from her medications, Brittany said.

Kay said the family has been "overwhelmed" by the number of people cheering for Makayla.

Every Wednesday in December, the Bob Evans in South Charleston has donated 15 percent of its sales to Makayla from when customers present a flyer at the register.

Todd Allen Branham, manager at the Pita Pit in Kanawha City, said his restaurant wanted to help out because, "Makayla has been so resilient." On Dec. 20, the Pita Pit donated 100 percent of its profits that day -- $800, Branham said -- to Makayla. Branham said he and the store's owner are adding their own contributions so they can give her $1,000.

The money will go toward travel expenses, bills, a fund for Makayla's mom so she is able to continue paying for health insurance, and, of course, Makayla's medical bills.

"We never would have dreamed we'd have this many people in the world who care about our little girl so much," Kay said. "We have been overwhelmed with all the people who have been cheering for us, sending messages and all the love out there. It's unreal how many people care about us."

Makayla got to travel the country roads back to her Marmet home for Christmas. She is now back in Cincinnati.

Brittany said she hopes people continue to pray for her sister, who is obsessed with Justin Bieber, Rascal Flatts, Nickelodeon -- especially Spongebob, Legos, singing and dancing.

To stay up-to-date with Makayla's condition, visit her Facebook page, "Cheering for Makayla," at http://www.facebook.com/CheeringForMakayla?frefts. The address to send Makayla something is Makayla Clark, c/o Amanda Middleton, 927 Seibel Lane, Cincinnati, OH 45238

Reach Megan Workman at megan.work...@wvgazette.com or 304-348-5113.

Recommended Stories

Copyright 2012 . All rights reserved. This material may not be published, broadcast, rewritten or redistributed.
Popular Videos
The Gazette now offers Facebook Comments on its stories. You must be logged into your Facebook account to add comments. If you do not want your comment to post to your personal page, uncheck the box below the comment. Comments deemed offensive by the moderators will be removed, and commenters who persist may be banned from commenting on the site.
Advertisement - Your ad here
Get Daily Headlines by E-Mail
Sign up for the latest news delivered to your inbox each morning.
Advertisement - Your ad here
News Videos
Advertisement - Your ad here
Advertisement - Your ad here